“The Neurological Alliance Australia (NAA) believes that the National Disability Insurance Scheme (NDIS) will transform the lives of people living with progressive neurodegenerative diseases and has promoted and supported the Scheme since its inception. To date some NDIS participants have received plans that have had positive, life-changing impacts on their lives, however, many others have received insufficient plans that will adversely affect their quality of life and place some at risk of avoidable hospitalisation.” The NAA comprises ten peak national bodies, including Brain Injury Australia.
The diagnosis of Alzheimer’s is among the most challenging to handle. The person’s memory deteriorates over time and they eventually become unable to perform simple daily activities such as brushing their teeth, going to the bathroom, and taking a shower, among others.
“We represent the more than 353,800 Australians living with dementia and the estimated 1.2 million Australians involved in their care. We advocate for the needs of people living with all types of dementia, and for their families and carers, and provide support services, education and information. Alzheimer’s Australia is a member of Alzheimer’s Disease International, the umbrella organisation of Alzheimer’s Associations around the world.”
“HemiHelp is a membership organisation offering information and support to children and their families affected by hemiplegia. Hemiplegia is a lifelong condition caused by injury to the brain. It affects movement on one side of the body to a varying degree, and can also cause other less visible effects such as epilepsy, specific learning difficulties, anxiety or challenging behaviour.”