Familes4Families is an South Australian organization that aims “to assist people with acquired brain injury and their families to build resilience and live a good life via our innovative, volunteer, peer based model of support.”
“This fact sheet talks about what the National Disability Insurance Scheme (NDIS) is and why it was created. It also lists some of the ways the NDIS is designed to improve the lives of people with disability in Australia.”
Plain-English fact sheet on receiving a first plan for National Disability Insurance Scheme (NDIS) participants in New South Wales (NSW).
“This fact sheet explains how Information, Linkages, and Capacity Building (ILC) will provide you with information, training and support to help you access mainstream services and get ready for the National Disability Insurance Scheme (NDIS). These supports are referred to as ILC.”
“Depression is a feeling of sadness, loss, despair or hopelessness that does not get better over time and is overwhelming enough to interfere with daily life. There is cause for concern when feeling depressed or losing interest in usual activities occurs at least several days per week and lasts for more than two weeks.”
“Inpatient rehabilitation is designed to help you improve function after a moderate to severe traumatic brain injury (TBI) and is usually provided by a team of people including physicians, nurses and other specialized therapists and medical professionals.”
“Driving is an important part of a person’s independent lifestyle and integration into the community. Because we take our driving skills for granted, it is easy to forget that driving is the most dangerous thing we do in our everyday lives. A brain injury can affect the skills needed to drive safely. If and when an injured person may safely return to driving should be addressed early in recovery. The injured person, family members, and health professionals should all be included in this important decision. If anyone has concerns that driving may put the injured person or others in danger, health professionals may recommend pre-driving testing.”
“Headwest is the peak advocacy body in Western Australia for people living with acquired brain injury and their families/carers.”
“Fatigue is a feeling of exhaustion, tiredness, weariness or lack of energy. After a Traumatic Brain Injury (TBI), you may have more than one kind of fatigue.”
“After Traumatic Brain Injury (TBI), many couples find that their relationship with each other changes dramatically. These changes are very personal and can be very emotional for both people in the relationship. This fact sheet will help couples understand some of the common changes they may notice in their relationship after TBI. Also, suggestions are given for ways that couples can address some of the more difficult changes they are experiencing.”
“Parental involvement is critical when a young person is returning to school after a Traumatic Brain Injury (TBI). Parents have the most knowledge about their child and are deeply invested in their daughter’s or son’s well-being and future. Often parents become advocates to ensure that all essential supports are in place to enhance their child’s successful return to school. Parents may also be a go-between to make sure all the necessary medical information has been provided so the school can design the best plan for the student. If the student is close to exiting school, vocational rehabilitation professionals may also be involved.”
The Brain Injury Association of Tasmania “plays a key role in activities that contribute to a community that is more informed about acquired brain injury and has a strong focus on the area of advocacy with an emphasis on representation and support of the ABI Sector.”
“Acquired Brain Injury (ABI) can be a devastating experience for the parents of an injured adult child. Parents say they have had no time to prepare for the many changes that occur to their lives as a result of their son/daughter’s brain injury. Often, now that their family have grown, parents are at the stage of planning for their own future. It seems that life and those plans disappear in an instant.”
“Acquired Brain Injury can be a devastating experience for spouses and partners. There is no time to adjust gradually to the injury and nothing can prepare people for the changes that occur. It is common to feel that the ABI is unfair and that the injury and its consequences are undeserved. Life plans can disappear in an instant.”
“Brain Injury not only affects the individual, but it affects the family as a whole. In the process of recovery parents may be preoccupied with the medical crisis and the experiences of siblings are often not recognised. This is a significant and stressful time for brothers and sisters because the sudden and confusing changes caused by the ABI can greatly influence family life. Siblings can be affected in many ways, sometimes for many years after the injury. Understanding how each has been affected by this experience is important to facilitate adjustment to the new situation.”
The “head and neck” was the body region most often injured (59%) in hospitalised cases of assault on women and girls.
“This Trainer’s Guide was created by the Pennsylvania Coalition Against Domestic Violence (PCADV) in the United States, as a “tool to educate and prepare domestic violence programs and advocates to enhance domestic violence advocacy services and skills,” when brain injury is involved.”
Head and neck injuries accounted for 19% of hospitalised do-it-yourself (DIY) fall-related injuries sustained around the home, and 7% of DIY injuries were brain injuries.
“The Evidence-Based Review of Moderate To Severe Acquired Brain Injury (ERABI) is a joint project to develop an evidence-based review of the literature for rehabilitation or rehabilitation-related interventions for acquired brain injury (ABI). The principle of the ERABI is to improve the quality of ABI rehabilitation by synthesizing the current literature into a utilizable format and laying the foundation for effective knowledge transfer to improve programs and services.”
“Our internationally recognized experts are the most experienced in Western New York for treating patients with sports-related concussion, traumatic brain injuries and various concussion symptoms through the development of research, care, baseline testing, treatment and a safe return-to-activity program that fits the individual.” Professor Barry S Willer, Director of Research at the University at Buffalo Concussion Management Clinic, has presented on concussion at Brain Injury Australia events.
“The first of its kind when it opened its doors in 2000, the University of Pittsburg Medicine Center Sports Medicine Concussion Program is a global leader in testing, treating, and researching sports-related concussions.”
“Out of Calamity: Stories of Trauma Survivors is a book of portraits of people and their families who have experienced and endured severe brain trauma with dignity, courage, humour and resilience.” The author is Roger Rees, Emeritus Professor of Disability Studies and Research in the School of Medicine at Flinders University, Adelaide. For twenty five years he has managed a rehabilitation and educational consultancy for people experiencing neurological injury and trauma.”
“Nearly all of the survivors of a traumatic head injury and their families with whom I have worked have had one complaint: There is nothing written that explains head injury in clear, easy to understand language. Most say the available material is too medical or too difficult to read.” Dr Glen Johnson, Clinical Neuropsychologist
This resource, produced by the National Organization for Fetal Alcohol Spectrum Disorders (NOFASD), the “national peak organisation representing the interests of individuals and families living with Fetal Alcohol Spectrum Disorders (FASD)”, aims to assist parents and carers to understand the challenges that children with Fetal Alcohol Spectrum Disorder (FASD) can have.
This resource, produced by the National Organization for Fetal Alcohol Spectrum Disorders (NOFASD), the “national peak organisation representing the interests of individuals and families living with Fetal Alcohol Spectrum Disorders (FASD)”, aims to expose the common myths associated with Fetal Alcohol Spectrum Disorder (FASD).
“This comprehensive book (2004) is designed to accompany a smaller quick reference version summarizing the best available evidence about the longer term care of patients with traumatic brain injury (TBI).”
“A registered charity that supports awareness, information, research, hope, positivity, humour and advocacy for people who are affected by Brain Tumours.”
The abilities of a patient change during rehabilitation. The Functional Independence Measure (FIM) instrument is used to track if those changes in ability result in severe disability.
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Guidelines for the Management of Severe Traumatic Brain Injury, published by the Brain Trauma Foundation (2007).
Position Statements on brain injury by the United Kingdom Acquired Brain Injury Forum (UKABIF) (2016-2017). “There are several areas which UKABIF sees as being crucial to improve the lives of people with acquired brain injuries. UKABIF has developed position statements for these which are listed below and may be used by the media as required.”